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neurology ophthalmology

Idiopathic Intracranial Hypertension (IIH) Diagnostic Criteria

Applies the Friedman 2013 revised diagnostic criteria for idiopathic intracranial hypertension (pseudotumour cerebri syndrome) in adults and children. Criteria, not a points score.

Score interpretation

IIH Criteria Not Met 0

The Friedman 2013 criteria for idiopathic intracranial hypertension are not met.

→ Investigate for secondary cause; rule out venous sinus thrombosis, medication (tetracyclines, isotretinoin, steroids); repeat LP if headache ongoing

Suggested IIH Without Papilloedema 1

No papilloedema or VI nerve palsy, but criteria B–E are met with at least 3 of the 4 MRI signs: IIH is suggested but cannot be diagnosed (Friedman 2013).

→ Specialist neurology / neuro-ophthalmology review to confirm the diagnosis; exclude other causes of headache and raised pressure.

Probable IIH 2

Papilloedema with criteria B–D met, but an opening pressure below the diagnostic threshold (Friedman 2013).

→ Ophthalmology review (Humphrey visual fields, OCT); acetazolamide (adults: 250-500mg BD; contraindicated in pregnancy — topiramate alternative); weight loss (target 10% body weight); neurology outpatient follow-up. Children: use a children's formulary.

IIH Without Papilloedema 3

No papilloedema, but abducens nerve palsy with criteria B–E met (Friedman 2013).

→ Neurology / neuro-ophthalmology review; headache management and weight management; monitor vision (visual fields, OCT).

Definite IIH 4

Papilloedema with criteria B–E met (Friedman 2013).

→ Urgent ophthalmology; acetazolamide (adults: up to 4g/day); weight management programme; optic nerve sheath fenestration or LP shunt if vision deteriorating; IV methylprednisolone for fulminant IIH; bariatric surgery referral if BMI >=35. Children: use a children's formulary.

Interpretation bands for the IIH Criteria. Apply clinical judgement and local guidance.

References

Related

Curated clinical cross-links plus same-class fallbacks.

Decision support only — verify against a current formulary, NICE, or your local guideline before clinical use.