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Grogan Staging System for Transthyretin Amyloid Cardiomyopathy (ATTR-CM)

Alternative three-stage clinical staging for ATTR-CM using NT-proBNP and troponin T. Complements the Gillmore staging system; validated in the Mayo Clinic ATTR-CM cohort.

Score interpretation

Stage I -- Best Prognosis (~57 months median) 0

Grogan Stage I: both NT-proBNP and hs-TnT within normal range

→ Initiate tafamidis 61 mg OD if not already started; monitor for disease progression (6-monthly NT-proBNP, hs-TnT, echo, 6MWT); genetic testing for TTR variants (V122I common in Black/African heritage; V30M common in Portuguese/Swedish/Japanese); family screening if hereditary ATTR; echocardiographic surveillance: septal thickness, diastolic function, longitudinal strain; avoid drug toxicity (see gillmore_attr_cm for medication cautions).

Stage II -- Intermediate Prognosis (~40 months median) 1

Grogan Stage II: one biomarker elevated -- moderate disease burden

→ Disease-modifying therapy (tafamidis) essential; symptomatic management: diuretics for congestion, anticoagulation if AF (NOACs -- data limited in ATTR-CM, digoxin caution due to amyloid binding); 3-monthly biomarker monitoring; echocardiography 6-monthly; ICD if high-risk arrhythmia or EF <= 35%; pacemaker if conduction disease (common in ATTR-CM); advance care planning introduction; cardiomyopathy centre review.

Stage III -- Poor Prognosis (~19 months median) 2

Grogan Stage III: both biomarkers elevated -- advanced disease

→ End-stage management as per Gillmore Stage III; palliative care involvement; advance care planning; tafamidis continuation (may slow progression even in stage III); heart transplantation at select centres (discussion warranted); symptom control: aggressive diuresis, nutritional support; DNACPR discussion; family support; spiritial care; referral to specialist amyloid service (National Amyloidosis Centre or equivalent).

Interpretation bands for the Grogan ATTR-CM Staging. Apply clinical judgement and local guidance.

References

Related

Curated clinical cross-links plus same-class fallbacks.

Decision support only — verify against a current formulary, NICE, or your local guideline before clinical use.