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Recombinant human lysosomal acid lipase enzyme replacement

Sebelipase alfa

Brand names: Kanuma

Adult dose

Dose: 1 mg/kg IV every 2 weeks (rapidly progressing infants: 3 mg/kg/week)
Route: IV
Frequency: q2w

Clinical pearls

  • Lysosomal acid lipase deficiency (LAL-D / Wolman / CESD)
  • Specialist metabolic

Contraindications

  • Life-threatening hypersensitivity (egg/component)

Side effects

  • Infusion reactions
  • Anaphylaxis (rare)
  • GI upset
  • Headache

Monitoring

  • Lipids
  • LFTs
  • Infusion reactions

Reference: BNF; NICE HST4; SmPC; https://bnf.nice.org.uk/drugs/sebelipase-alfa/. Verify against your local formulary and the latest BNF before prescribing.

Related

Curated clinical cross-links plus same-class fallbacks.